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“still not out of bed after several days of total bed rest. hoping to do something productive today.
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“dreaming of a hot breakfast– bagel creamcheese, w egg, maybe. and bitter green jasmine tea, but i can’t get to the kitchen.
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“i’ll make breakfast when the hunger exceeds my fatigue. until then i’ll wait in bed hungry. this is amerikkkan health care.
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“and i have health care coverage. it’s even what they call cadillac care. but it doesn’t cover in home support when i can’t get up.
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“my health care doesn’t cover much of what helps me manage my illness. it pays for lots of tests test test. but no actual care.
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“i need regular massage, chiropractic, reiki or acupuncture, but none of that is covered. what’s covered? medication– which helps some.
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“what else is covered– tests and more tests. dr.s appts. treatments that don’t help. treatments for other conditions some other people have
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“therapy is covered, because if i talk abt it enough the illness will go away and i’ll fly to the kitchen on my self actualized wings.
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“@emma_rosenthal and that just made me laugh so hard I peed a little. Omg
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“.@AureliaCotta they tell me i keep my sense of humor thru the worst trials. i try. i’ll be performing here all week!
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“not that therapy doesn’t help. but how much good can come from talking about something that can’t be changed?
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“getting hungrier. the sun is out. i saw it hitting the banana leaves. but no shadows yet, it has to pass over the house to the back yard.
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“i’m so hungry. trying to get up. really trying. this is so fucking frustrating.
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“tho now,just getting out of bed & to the kitchen is overwhelming. i just can’t command my body to do what it needs to do to make that happen
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“of course,once i get to the kitchen i’ll have to remember how to toast a bagel and make tea. sometimes i can’t think things that complicated
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“and if something is out of place, one aspect of the routine that takes additional thought, i’m lost. this is fibromyalgia brain fog
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“like if there isn’t a clean tea pot. then i go nuts. the idea of having to clean the tea pot, that can be too much sometimes.
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“i do however have the capacity to get a tweet from -40 characters down to 120. ha ha ha . go figure.
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“anyone who says “we don’t realize how easy we have it in amerika” doesn’t have a clue abt what most ppl in amerika deal with.
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“.@Farese9190 @TodayHIRING no fucking way! i tweet abt how sick i am and i get spam telling me to get a fucking job?? see– amerikkka!!!!
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“.@Farese9190 @TodayHIRING i would get a job if i could. right now i can’t fucking get out of bed.
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“got damn fucking spam bot, thinks this is an appropriate rsponse to chronic illness! typical @Farese9190 @TodayHIRING
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“i really hate this level of helplessness. all i want is a fucking bagel and some hot tea.
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“okay, i got breakfast. hope i didn’ t leave the stove on. ugh. back in bed, with a tray of wonderfulness.
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“i just fell. i was in bed and i fell. no i didn’t fall OUT of bed i fell in bed. how does someone fall in bed?
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“okay, i’ve been sitting up long enough. this has been a lot of work. can’t type lying down. so, i’ll be back later. time to rest.
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