Denial of Care: DISability, age and the rationing and denial of care

Social Justice Links Related to Covid-19

This list or links was initially posted on facebook and facebook censored it!!
Your post goes against our Community Standards on spam No one else can see your post. We have these standards to prevent things like false advertising, fraud and security breaches. Emma Rosenthal published a note. March 14 at 7:31 AM Social Justice Links Related to Covid-19 I’m just getting started. Also, I haven’t read all of these. I just needed to put them all in one place and closes up some windows on my computer. I’m reading as fast as I can. Coronavirus Is the Perfect Disaster for ‘Disaster Capitalism’

Work in progress: New links added all the time. Newest links at the top of the page.

I’m just getting started. Also, I haven’t read all of these. I just needed to put them all in one place and closes up some windows on my computer. I’m reading as fast as I can.

For my other collection of resources and links related to Covid19:



Links:

Corona Virus Causes Global Outbreak of Racism

Work in progress. new links added. Most recently added links at top of page.




For my other collection of resources and links related to Covid19:




Links:
WORK IN PROGRESS. NEWER ARTICLES ADDED REGULARLY. MOST RECENTLY ADDED ARTICLES ARE AT THE TOP OF THE LIST:

  • “When Western health care experts say that this sort of lockdown won’t work, they basically mean it’s never been tried on this scale with this kind of uber-efficient government.” “Considering the underlying distrust, it’s hard for the government to say what many epidemiologists are saying: This outbreak is serious but not catastrophic. Because if the state leveled with the people, it would also have to admit that there is no need for this degree of social control. Fewer than 200 people were reported to have died as of Thursday evening, in a country of nearly 1.4 billion, and there is no indication that we are at the start of a Hollywood disaster-style movie.”
    https://www.nytimes.com/2020/01/30/opinion/coronavirus-china-epidemic.html


     

  • ‘They yelled Coronavirus’ – East Asian attack victim speaks of fear
    https://www.theguardian.com/world/2020/feb/16/they-yelled-coronavirus-first-british-attack-victim-east-asian-man


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Corona Virus Causes Global Outbreak of Racism

 

I’m Done

By  Erin Branscome

FYI that I’m pretty much done with extended family and acquaintances who don’t believe that everyone should have access to healthcare.

To be clear, I’m not talking about people who disagree with aspects of the Affordable Care Act, or any other specific system. I’m not talking about people who agree that everyone should have access to healthcare, but who *disagree* with me on how best to accomplish that.

I’m talking about those people who believe that anyone who can’t afford health care should suffer and die. I’m talking about people who’s biggest complaint about “Obamacare” is that their premiums increased too much for them to be able to afford a new pool. I’m talking about people who believe as a matter of principle that you should be on your own when it comes to healthcare — if you can convince other people to help you out, great, but if you can’t do that, sorry; guess you’re gonna die a slow, painful, and utterly preventable death.

Because what every single one of you are saying, if you drill it down, is that if it were up to you, I would be DEAD.

This is not conjecture. This has been confirmed by multiple doctors. If I hadn’t been steps from an operating room when my intestines ruptured, I. Would. Be. DEAD. (I came very, *very* close to dying, regardless.) According to the ER doctor who admitted me that night, if I hadn’t had insurance — good insurance — I *wouldn’t* have been in the hospital, because at the time, they didn’t think I had anything that serious, and admitting me was a “better safe than sorry” thing. If I hadn’t had insurance, hadn’t had the ability to *afford* an optional night in the hospital, I would have pushed for discharge. The ONLY reason I didn’t go home that night, with what they thought was just an ulcer, is that I had insurance. I only had insurance because of the Affordable Care Act.

Without “Obamacare,” I WOULD HAVE DIED. Either alone and terrified in my bed, unable to cry out for help as the pain became excruciating and my lung collapsed — OR, were I able to crawl down the hall to my parents, I would’ve likely bled out in their arms while they tried to figure out what was going on, tried to get help, writhing in indescribable pain and suffocating to death on my own fluids, before mercifically losing consciousness and dying. Imagine the trauma to my parents and siblings.

And if you had your wish, that’s exactly what would’ve happened.

I’ve explained this, over and over. Again and again I strip naked for you, exposing my scars — flay my skin and rip it apart, letting you climb inside, *hoping* to find some scrap of compassion and always being disappointed. Humiliated, as you refuse to address the critical point and instead repeat talking points and lies, making it perfectly clear that nothing I said mattered. My pain — my *life* — doesn’t matter.

I’m done.

As so many people have said, I cannot teach you how to care about other people. I can’t explain to you *why* you should care; I can’t argue you into compassion. And I’m through trying.

But understand this: unless it’s preceded by a humble admission of guilt and a sincere apology, I NEVER want to hear “I love you” or “I’m praying for you,” or even “How are you doing?” ever again. I NEVER want to hear you offer your disingenuous concern or empty prayers to my parents, ever again. Your words are lies, designed to soothe your conscious and make yourself feel better, and I refuse to allow you that option, out of some misplaced sense of “civility.”

If it were up to you, I. WOULD. BE. DEAD. Period.

You’ve told me that you hate the ACA because of the non-essential items you were unable to purchase because of increased premiums. Even *assuming* that’s true — a big assumption — you’re *still* telling me that my LIFE means less to you than a new pool or a cross-country RV trip. And *I’m* the one lacking civility?

From now on, when you ask me how I’m doing, the answer will always be “none of your business.” When you tell me you love me, I’ll respond that I don’t believe you. And I sure as hell don’t want the meaningless, feel-good prayers you offer up to your false idols of American Nationalism, white supremacy, patriarchy, and capitalism. (And if I see or hear about similar comments to my parents, my response will be the same.)

I’m. Done.

Screaming From the Margins

Quote by Maya Angelou. Black and White headshot of Maya Angelou with her hand partially obscuring her face Text: When someone shows you who they are, believe them. - Maya Angelou

Photographer and graphic designer unknown. If this is your graphic, please let me know so I can give you proper attribution.

Be brave during these difficult and trying times. Speak from your heart and your lives. Speak for your lives and the lives of our sisters, our brothers, and all our nonbinary siblings, everyone screaming from the margins! Make space, hold space for those with less voice than your own, for those who are brought forth to speak truth to power because the times demand that of them.  Speak out against violence, especially the systemic violence of racism, sexism, ableism.

Darken your profile or don’t darken your profile. Follow the news or don’t follow the news. Tell your story or wait until you find the spaces that are right for disclosure. Do not let the abusers and their apologists tell you what to do. Instead remember that this is a time of reckoning and the violent have a choice to hide who they are (or admit who they are) and reevaluate their actions or show us their body politic in all its brutality. The brazenness with which many choose to defend rape culture is truly impressive but unwise. 

We, the marginalized, the victimized, the silenced, the once silenced; are stronger than ever, though it does not always feel this way. Our secrets, the daily attacks on our body, politics that were conducted behind closed doors or under capes and hoods, under cover of night, are now out in the open. The perpetrators are scared and they are outraged. Their lifetime of entitlements are crumbling around them and the rules have changed.

It amazes: the number of people willing to defend abusers during these fragile times, on the social media walls of friends who have either stated or implied that they are victims of abuse without any sensitivity to the impact their words have on others. It is as if they think the world is split into the people they know and actual victims. It is as if the entire #MeToo movement went right over their heads: this happens to every woman, every day. We carry this trauma in our bones and in our cells, in the passageways of synapse, in the corners of memory. Listen to us to understand the geography of trauma. Believe us. We have no reason NOT to tell the truth once we break the silence. 

All you rape apologists showing us who you are. Watch out, some day your past will come up and bite you in the ass. It’s still a free pass for abusers but our day will come and your antics will be saved, for the record. We all known the likes of Brett Kavanaugh, in high school, in college, in the work place, in our kitchens and bedrooms. We know the abuse we brought down when we disclosed, when we named names, when we dared to tell anyone. We know the silence they assume and count upon as we carry their shame. We remember how funny it was to them to get girls drunk and abuse us, or corner us, or push us against lockers.  You’re all playing rapist bingo with your blame game. But we see what you’re doing. So yeah, keep showing us exactly who you are. We’re keeping receipts. There will be a day of reckoning.

Sisters and all people of the margins: feel free to set clear guidelines for your own spaces, including your social media spaces. This is not a violation of anyone’s right to free speech. They have their own wall on which to spew their hate. They have their groups, sanctioned by the powerful owners of the platforms. 

Use their self exposure to determine who you need in your life. Thank them for showing you who they really are. Plan accordingly. 

#PTSD #CrossGenerationalTrauma #MMIW #BlackLivesMatter #SayHerName #NoBanNoWall #DisposableJewishWomen #FeminismIsChoice #ScreamingFromTheMargins  #IntersectionalAgendas

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Banning Plastic Straws: The Strawman of Strawmen

A bingo card titled "Plastic Straw Ableism Bingo", in yellow text on a green field. At the bottom of the page it says myfreebingocards.com Bingo squares have black text on grey field. Text: What about reusable straws? They can use paper straws & compost them. My sister's cousin's friend works with the handicapped... It's ableist to say that DISabled people need straws. They're just as capable as everyone else. We all need to make sacrifices (which is why I chose a campaign that requires absolutely nothing from me). All this negativity. It's a start!  I don’t see any reason why we waste resources on severely retarded people. What about BAMBOO!? What did people use before there were straws? We have to start somewhere.  Why can't you carry a metal straw? Can straws be made out of hemp? Carry reusable straws with you. It’s very simple. Problem solved. Wouldn't it be the responsibility of the "DISabled" person to have one just in case? Should we expect establishments to provide wheelchairs for all the disabled "folx" too? I once heard a blind man say.... Some of my best patients are crippled. I know someone who needs a straw or water bottle to drink and he carries his own. Straws worked fine without being plastic. People will stop using them if you stop selling them and making them. Start making paper ones like the GOOD old days. They can drink from a well, actually.... We need to start somewhere. It's killing the ocean. Everyone needs to make sacrifices.

By Emma Rosenthal for inbedwithfridakahlo.wordpress.com

Rebuttals to each bingo square:

What about reusable straws?
Reusable straws are problematic for many reasons. People with the types of DISabilities that require the use of straws to drink often can’t use reusable straws which need to be cleaned, very carefully. If they are not cleaned, they can harbor diseases which can be especially harmful and dangerous for people with compromised immune systems.

They can use paper straws & compost them.
Not everyone has a compost pile, which requires a lot of work and space to maintain and which may not be something someone with a DISability that requires the use of drinking straws, to be able to do on a regular basis.
Paper straws that are thrown in the trash contribute to landfills which are air tight. Nothing decomposes in a landfill.
Also, paper straws are not as substantial as plastic ones, and often break or fall apart.

My sister’s cousin’s friend works with the handicapped…
This is the DISability version of “some of my best friends”, it is stated in many forms but usually doesn’t involve having actual friends with DISabilities.  (My clients, my child, my dad….), that dismiss the issues of access and accommodation by claiming someone else with a DISability said something different or had different needs.

It’s ableist to say that DISabled people need straws. They’re just as capable as everyone else.
This is a concern troll statement that pretends to care about and advocate for DISfolx by pretending that accommodations aren’t really necessary.

We all need to make sacrifices (which is why I chose a campaign that requires absolutely nothing from me).
The straw issue demands that DISfolx give up drinking while demanding little or no sacrifice by anyone else.

All this negativity. It’s a start!
Calling any demand for access, rights,  human needs negative is a really negative argument that negates the needs and existence of entire groups of people.

I don’t see any reason why we waste resources on severely retarded people.
For many DISfolx, this is the crux of the issue: that our lives have no value, that those who need straws are useless people who don’t deserve to use resources. It’s a #NaziMove that basically uses environmentalism as the basis of eugenics.

What about BAMBOO!?
This is one more superficial call for environmentalism that ignores the social justice issues raised in critiquing the “ban straws” campaign.  Bamboo straws would still need to be cleaned and would also still end up in landfills.

What did people use before there were straws?
Using the past as a model for DISabilty access today is a bad move. People died. DISfolx, died.

We have to start somewhere.
No, we have to have well thought out campaigns that don’t marginalize already marginalized people while demanding little of anyone else and totally ignoring the larger social issues of capitalism, corporate destruction of the environment and the planet. Environmentalism separate from the larger social justice dialogue that ignores human rights and capitalism is not an environmental movement, it’s a feel good without doing anything movement.
Also, this is just a very mean way to derail the issues being raised by DISfolx in this silly campaign that will have little or no impact on the environment.

Why can’t you carry a metal straw?
A metal straw can injure the person using it. Also, metal straws cannot be used with hot liquids.

Can straws be made out of hemp?
Possible. Go and make them, market them and assure that they’re affordable and available. Do that first, then get rid of something lots of people are telling you they need to have for something as basic as drinking.

Concern Troll  (This is the free space card on this bingo card.)
A concern troll is someone who is really against an issue or concern but pretends to be worried or interested in the well being of the people impacted by that issue.

Carry reusable straws with you. It’s very simple. Problem solved.
The campaign is for a full out ban. Carrying straws isn’t the answer.

Wouldn’t it be the responsibility of the “DISabled” person to have one just in case?
Should we expect establishments to provide wheelchairs for all the disabled “folx” too?
This is a misperception that DISfolx use up more resources and demand “special” accommodations than ENabled people. ENabled people are accommodated all the time. Restaurants, movie theaters all provide chairs for ENabled people. Bathrooms are designed for the use of ENabled people. DISability accommodations simply demand that the same accommodations provided to people whose bodies conform to a norm, be provided to everyone else as well.

I once heard a blind man say….
This again is a way to derail any issue by claiming that one person from a group represents the whole group, though in this case, someone who is blind probably doesn’t represent those who need straws to drink.

Some of my best patients are crippled.
This is again another version of the “some of my best friends”, though of course the person doesn’t have DISabled friends.

I know someone who needs a straw or water bottle to drink and he carries his own.
Great! Good for them, and with an all out ban, plus a stigma against using straws, they may not be able to carry them in the future. What else do they need to carry? Why should DISability accommodations be an individual problem and not a collective responsibility? We can’t resolve real environmental issues individually.

Straws worked fine without being plastic.
No they don’t.

People will stop using them if you stop selling them and making them.
Exactly. That’s the problem, DISfolx, even ones who carry their own straws and demand nothing of the world, won’t be able to get straws.

Start making paper ones like the GOOD old days.
Paper straws don’t hold up and fall apart easily. In the GOOD old days, DISfolx were killed, left to die, sent to institutions and hidden from public view. Your eugenics is showing.

They can drink from a well, actually….
Okay, I sparked this with a bit of humor. “Well actually” is the way Ablesplainers (mansplainers, whitesplainers) start a sentence when they want to silence someone from the actual group who is speaking from the authority of their own experience. 

It’s killing the ocean. Everyone needs to make sacrifices.
So then make a sacrifice. Not using drinking straws is a really odd campaign that people are pouring lots of time and attention and resources into, without any real change or impact on real, deep, actual environmental issues. A real change means a total shifting of priorities and that includes recognizing the value of people over profit, over expedience, over industry, over greed. And that means DISabled folx, too.

For more links, memes and videos on the issue of DISfolx and the straw ban:
https://inbedwithfridakahlo.wordpress.com/2018/07/12/the-strawman-of-all-strawmen-links-and-resources/