IF YOU DON’T FIGHT FOR US
DON’T CRY FOR US
As medical staff and administrations determine that elders and people with preexisting conditions not get ventilators, the largest demographic of those who die are men (AMAB), and yet no one is suggesting that men (AMAB) are refused treatment. (See how preposterous that even sounds?). One could go on to argue that men are the leading cause of violence, school and public shootings, crime,etc. Men don’t live as long as women. And yet no one would dare to suggest that treating men as a group is a waste of resources. So why would it make sense to not treat people based on other demographics? In some cases people with cognitive DISabilities are being denied treatment, not because they won’t survive, simply because those in power to make these decisions determine that some lives have less value than others.
First come first serve, flip a coin.
For my other collection of resources and links related to Covid19:
Race, class and location also play key roles in determining who shall live and who shall die. This post focuses on age and DISability, but racism, sanctions, class and location have particular intersections with receipt of care.
When certain preexisting conditions are identified as factors in who gets care, those groups with a higher incidence of those conditions will die unjustly. Diabetes, high blood pressure and obesity (without evidence) are listed in some discussions as factors , but these conditions specifically impact certain groups (Blacks, Latinx, Jews, Native Americans) more than others.
- Corona Virus Causes Global Outbreak of Racism
- Social Justice Links Related to Covid-19
Work in progress: New links added all the time. Newest links to this page at the top of the list.
- They essentially starved him to death, denying him food or water for 6 days.
Quadriplegic Father with Coronavirus Died after Austin Hospital Opted to End Treatment
“Michael Hickson, 46, has died in Texas after doctors refused to treat him for COVID-19 because of his disability.“His wife and five children have been by his side as he worked to recover. Then in 2020, he contracted COVID-19 from a staff member in his nursing home and developed pneumonia. He was hospitalized at St. David’s South Austin Medical Center, but doctors there refused to treat him, allowing him to die.In a recorded conversation between the doctor and Melissa, she was told that he would not receive treatment due to his disability:Doctor: So as of right now, his quality of life — he doesn’t have much of one.Melissa: What do you mean? Because he’s paralyzed with a brain injury he doesn’t have quality of life?Doctor: Correct….…Hickson was refused food or treatment for six days and died on June 11, 2020 from untreated illness.”
Horrific: Texas man with disability dies after doctors refuse to treat him for COVID-19
Pandemic means Americans with disabilities aren’t getting the services they need
- Experts Race to Set Rules For Deciding Who Lives and Who Dies
Coronavirus: Unlawful do not resuscitate orders imposed on people with learning disabilities
‘We’re Literally Killing Elders Now’
Thousands of Americans in long-term-care facilities have died from COVID-19. My grandmother just became one of them.
- DISfolx already have obstacles to just access to medical care. Those biases are amplified and illuminated under this current pandemic.
“People with disabilities have long had a tortured relationship with the U.S. medical system, especially when it comes to end-of-life care. Dr. Clarissa Kripke, a professor at the University of California, San Francisco, medical school, told the National Council on Disability she had witnessed doctors prematurely attempt to force people with disabilities to go to hospice.
Ivanova Smith, a disability-rights activist in Takoma, Washington, who has an intellectual disability, said her uncomfortable experiences with the medical system make her worry she would be treated unfairly if her state rationed care. A doctor once chastised her for showing up to an appointment without her husband, she said, and after the birth of her daughter, nurses spoke to her in patronizing tones and made fun of her nearsightedness. She said the Washington policy reminds her of eugenics.
“I would hope that they would try to do everything they could to keep me alive, but it looks like that’s not guaranteed, so it’s kind of scary for me,” said Smith, whosigned onto the complaint about Washington’s policy. “I’m fearful of how they would treat me and my differences….
…Policies and guidelines in 14 states, including Alabama’s, put patients with specific criteria or diagnoses at the back of the ventilator line in a way disability advocates decry as discriminatory. Alabama, Louisiana, Pennsylvania, Texas and Utah direct hospitals to take dementia into account. In Washington, the state’s guidelines say doctors should consider “baseline functional status” when determining whether to move patients to end-of-life care, including “loss of reserves in energy, physical ability, cognition and general health.”
“That’s not, ‘Is this person going to respond well to treatment?’” Wakschlag said. “That’s a judgment about who is more valuable than others that doesn’t really have a place in a medical decision-making process.””
State Policies May Send People With Disabilities To The Back Of the Line For Ventilators
- DON’T MISS THE PART WHERE THERE ARE ACTUAL PROPOSALS AND PROTOCOLS TO STEAL VENTILATORS, THE PERSONAL PROPERTY, FROM PEOPLE WHO USE THEM FOR OTHER CONDITIONS.
“”We’ve been hoping and praying we don’t end up in the hospital for anything,” Shona said.
“Typically when he goes into the hospital, they let him bring his own ventilator in. The worry now” she continues, is “Will they take his ventilator and use it for someone who has COVID-19?””
‘We are dead’: People with disabilities fear they will be on losing end of doctors’ life-or-death choices amid coronavirus crisis
- “State health officials have drafted rationing plans that exclude some people with significant disabilities from ventilators and other treatment.
Mostly, though, the belief among people with disabilities that they will get lesser treatment is based on something even more concrete — their own harsh experiences in the medical system before the pandemic.
Almost every person with a disability, or their family, can tell a story of a time when they were treated dismissively or even denied the care they needed.”
People With Disabilities Fear Pandemic Will Worsen Medical Biases
Coronavirus: Sick kids’ parents asked to sign Do Not Resuscitate orders if they get bug
EXCLUSIVE: Shocked parents are asking if their kids’ lives are thought not worth saving as most vulnerable are asked to sign don’t resuscitate forms amid coronavirus crisis
Death Toll Climbs Inside Group Homes for the Developmentally Delayed
- “The sacrifice-old-people trade-off was always built on rotten logic. Any policy decision leading to mass casualties, even if concentrated in certain groups, would grind the economy to a halt just as readily as stay-in-place orders and mandatory shutdowns. And, of course, the idea that covid-19 affects mainly very old people, or only people with compromised immune systems, turned out to be a fiction…
…We still have much to learn about the novel coronavirus, but one thing it has proven conclusively is the porousness of our carefully drawn boundaries. We’re all connected — by economic ties, by our personal and family relationships, by the mechanics of contagion. These forces vault lines of geography, party and age. The effect is an interlinked society where no group can suffer in relative isolation while the remainder go about their ordinary business. Any policy that puts the people most susceptible to the virus at risk puts us all at risk. That was true last month, when a few rash voices proposed that older people might sacrifice themselves for the common good. It’s true now, when some states are still putting vulnerable people in harm’s way.”
Many parts of America have already decided to sacrifice the elderly
“We’re being punished again”: How people with intellectual disabilities are experiencing the pandemic
From ventilator restrictions to the challenges of self-isolation, people with intellectual and developmental disabilities are facing a crisis years in the making.
Coronavirus: Autistic support group ‘told it needed DNR orders’
- “Seniors and elders in nursing homes and elsewhere aren’t inherently vulnerable; nor are disabled people in institutions inherently vulnerable. Both of these groups (among others) are rendered vulnerable. That is, they are made vulnerable. Vulnerability isn’t a characteristic that certain individuals possess or embody. Like disability, vulnerability is a naturalized apparatus of power that differentially produces subjects, materially, socially, politically, and relationally. In short, it is by and through the contingent apparatus of vulnerability and other apparatuses that certain members of the population are vulnerableized.”
COVID-19 and The Naturalization of Vulnerability
- THE CORONAVIRUS PANDEMIC HAS BROUGHT OUT SOCIETY’S ALARMING DISREGARD FOR PEOPLE WITH DISABILITIES
Politicians and the general public are ignoring the health and safety needs of those with disabilities and chronic conditions.
- HOW CORONAVIRUS EXPOSES THE WAY WE REGARD AGEING AND OLD PEOPLE
- Civil rights leaders to DeSantis: Don’t allow state to withhold care from disabled
Protect Rights of People with Disabilities During COVID-19
Ensure Access to Information, Essential Services For Those Most at Risk
I’m disabled and need a ventilator to live. Am I expendable during this pandemic?
- Americans With Disabilities Are Terrified
They fear they could be denied lifesaving treatment if they end up in the hospital with COVID-19.
- HHS Warns States Not To Put People With Disabilities At The Back Of The Line For Care
- People with Down syndrome could be left to die of coronavirus to ‘save’ medical supplies
- U.S. Civil Rights Office Rejects Rationing Medical Care Based on Disability, Age
Medical providers must not engage in “ruthless utilitarianism” in deciding who gets lifesaving treatment for the coronavirus, a federal civil rights officer warned.
Whose Life is Worth Saving? In Washington State, People With Disabilities Are Afraid They Won’t Make the Cut.
OCR Issues Bulletin on Civil Rights Laws and HIPAA Flexibilities That Apply During the COVID-19 Emergency
- BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)
People With Intellectual Disabilities May Be Denied Lifesaving Care Under These Plans as Coronavirus Spreads
- U.S. Hospitals Prepare Guidelines For Who Gets Care Amid Coronavirus Surge
“The complaint outlines concerns that the Alabama Department of Public Health’s Emergency Operations Plan for addressing ventilator rationing in the event of a health emergency will discriminate against those with intellectual, developmental, and physical disabilities… …The plan orders hospitals to “not offer mechanical ventilator support for patients” with “severe or profound mental retardation,” “moderate to severe dementia,” and “severe traumatic brain injury.” The policy also applies to children… “…The complaint echoes one filed earlier this week over similar policies that the state of Washington has prepared in response to Covid-19. Minnesota, Colorado, Alabama, Tennessee, and Utah have all introduced guidelines, criteria, or crisis plans that would allow for allocation—or reallocation—of finite health-care resources based on physical and/or mental health.”
Alabama’s Virus Ventilator Plan Latest to Draw Ire of Disabled https://news.bloomberglaw.com/pharma-and-life-sciences/alabamas-virus-ventilator-plan-latest-to-draw-ire-of-disabled
DISABILITY DISCRIMINATION COMPLAINT FILED OVER COVID-19 TREATMENT RATIONING PLAN IN WASHINGTON STATE
” Rights Groups: Coronavirus Treatment Plan Discriminates”
A Woman With Lupus Said Her Health Care Provider Is Stopping Her Chloroquine Prescription And Thanked Her For The “Sacrifice” https://www.buzzfeednews.com/article/tanyachen/kaiser-permanente-lupus-chloroquine
DISABILITY ‘I Will Not Apologize for My Needs’ Even in a crisis, doctors should not abandon the principle of nondiscrimination.
Majority of NYC’s coronavirus cases are men between 18 and 49 years old
Killing off elders, DISabled folx and sick people is a Nazi move
Life unworthy of life
People with disabilities are afraid they will be denied health care because of coronavirus
The Coronavirus Aid Package Could Harm Disabled People A provision denying small-business loans to disability support services could damage a fast-growing and urgent piece of our care sector.
This is why those ok boomer jokes were really hurtful. It won’t be the rich and powerful elders who will be impacted by this callousness, by those who let our health care infrastructure get to this point, it will be the working class elders whose lives will be disposable. Oh, and people with preexisting conditions. And you thought the criteria for health INSURANCE was tough. Now it means you don’t get a ventilator when you need one. Aren’t all you liberal so called radicals getting it now: your social darwinism is showing.
“It may become necessary to establish an age limit for access to intensive care…. …In addition to age, doctors and nurses are also advised to take a patient’s overall state of health into account: “The presence of comorbidities needs to be carefully evaluated.” This is in part because early studies of the virus seem to suggest that patients with serious preexisting health conditions are significantly more likely to die. But it is also because patients in a worse state of overall health could require a greater share of scarce resources to survive: “What might be a relatively short treatment course in healthier people could be longer and more resource-consuming in the case of older or more fragile patients.”” “This means that our political leaders, the heads of business and private associations, and every one of us need to work together to accomplish two things: Radically expand the capacity of the country’s intensive-care units. And start engaging in extreme forms of social distancing. Cancel everything. Now.”
The Extraordinary Decisions Facing Italian Doctors There are now simply too many patients for each one of them to receive adequate care.
How’s this for supremacy? Doctors in Italy have stopped treating anyone over 80 and some people with preexisting conditions because survival rates for those groups is somewhat lower. (Survival in general for those needing a ventilator is 50%.). But you don’t see them not treating men because their infection rate and death rate is higher. It all comes down to whose lives have more value to those in power.
Prioritizing based on demographics is eugenics.
“Coronavirus victims in Italy will be denied access to intensive care if they are aged 80 or more or in poor health should pressure on beds increase, a document prepared by a crisis management unit in Turin propose.”
Italians over 80 ‘will be left to die’ as country overwhelmed by coronavirus Hardest-hit region drafts new proposals saying who will live and who will die https://www.telegraph.co.uk/news/2020/03/14/italians-80-will-left-die-country-overwhelmed-coronavirus/
Local media, including the online journal Publico, reported that some hospitals in Madrid have already been refusing to fully treat people over 80-year-old or those older than 70 with underlying health conditions….The Spanish government has not published protocols for doctors forcing a prioritized treatment. However, a major Spanish doctors association, Semicyuc, published a plan for doctors dealing with the crisis. The organization recommends prioritizing those with better chances of survival, a longer expected lifespan, better quality of life and those with high “social value”. Spanish hospitals strive to combat virus as cases rise https://www.aa.com.tr/en/europe/spanish-hospitals-strive-to-combat-virus-as-cases-rise/1774184
“Besides, the risk of eroding people’s trust is intolerable. The last thing we want is for people to lose confidence that they will be treated fairly just because of their health conditions or age. Do we intend to make such policies available to the public, or do we keep them secret so only people with privilege will know about them? This is not the story we want to leave for history. And who said that an order from a health authority takes the moral burden off your shoulders? Have we forgiven the doctors in Nazi Germany who experimented with vulnerable patients? We humans carry moral responsibility for our actions. If anything, blindly following an unjust order doubles the burden. Worse than doing what is unjust is not standing up to advocate for the vulnerable. What will be remembered is that we pacified our consciences with a piece of paper we called a “policy… …The healthcare system has a terrible track record of failing various marginalized groups. But we do have a good track record of providing exceptional care to people. Let’s take the opportunity to do it right this time and not miss our chance, because if the public perceives a failure on our part, their trust will take decades to regain.””
Deciding who lives and who dies
This is one of the scales being used to deny or provide care:
Charlson Comorbidity Index (CCI)