Field Tested Rules for Crrpls

Rules for crrpls: do not ever ever ever ever ever imply that DISability rights is part of the larger struggle for universal human rights, against racism, sexism, gender justice and class power.

Rules for crrpls:  Don’t impose yourself on real social justice movements, attempt to infuse DISability rights into discussions of marginalization, or insist, provide suggestions or even resources that would enhance DISability access in the larger human rights struggle.

Rules for crrpls: Keep your political activism limited to organizations that focus on DISability rights and issues of access that don’t interfere with real social justice work, even if and when those organizations exclude you either because they are run by nonDISfolx, white folx, people with social and economic capital or a professionalized staff not interested in grassroots organizing.

rules for crrpls: When people try to help you, always be grateful. Never contradict them or try to explain what you really need. This will hurt their feelings (enrage them). They’re really doing their best (trying to make themselves feel good at your expense), and it’s not like you deserve to actually have a say in your agency, body autonomy or full inclusion.

rules for crrpls: Do not get offended when people make fun of your health condition or physical or emotional characteristics. Certainly don’t interrupt their fun by pointing out the arrogance, bigotry and entitlement inherent in making fun of people’s afflictions and certainly DON’T turn the tables by making fun of them, when they give you that tired excuse “we’re just kidding, lighten up.” When they say, “anything goes” that doesn’t REALLY mean that you can make THEIR entitled asses the butt of your jokes.

Rules for crrpls:  Don’t ever assert that Disability rights has any place in the larger struggle for social justice and human rights. these people are working hard enough for social justice to have to find time and resources to include your sorry ass.

Rules for crrpls:  Appear grateful and upbeat at all times, and if you can, provide material for the inspiration of people without DISabilities.– You know: paint with your feet, walk on your hands, sing out of your ass– stuff like that. They love that shit.

Rules for crrpls:  Never appear more capable than someone without a DISability. This embarrasses them and interferes with their entitled sense of superiority. There’s nothing worse than appearing less capable than someone already labeled incapacitated.

Rules for crrpls:  Do not discuss your DISability in public. Discussion of DISability is the purview of those who do not have DISabilities, so they can appear magnanimous and generous.

rules for crrpls: Do not say “excuse me” if someone is blocking your way and is deep in conversation. Wait patiently until they are finished. Also, do not attempt to go around them, because they might bump into you and this would startle them.

Rules for crrpls: Don’t ask if an event that is open to the public or that you’ve been invited to, is ACTUALLY accessible. this is rude, as it puts the host on the spot and risks causing them embarrassment.

Rules for crrpls:  Don’t show up to an event that isn’t accessible. This too may lead to the embarrassment of the host. You should magically know with your other hyper sensitive enhanced sensory abilities, if an event is accessible or not.

Got any  more? Leave them in the comments…..

 

Dear Meryl Streep: No Abled Savior Needed

By Daniel Au Valencia

This article was originally published by Autistic actor Daniel Au Valencia on their blog, Acting NT. The entire text and accompanying imagery are copied here with the author’s permission.

Meryl Streep has managed to make headlines by attacking the world’s lowest-hanging fruit: Donald John Trump. Apparently it is viewed as an act of bravery to stand up to the most blatantly and visibly racist, ableist, misogynistic, xenophobic, homophobic, transphobic, and all around assholish public figure of modern times. It is especially brave to do so as a wealthy abled white cis woman, in the process of receiving a nationally televised award.

At the Golden Globes ceremony on January 8th, 2017, Meryl Streep received the Cecil B. DeMille Award, and used part of her acceptance speech to dredge up a year-old news item: Donald Trump publicly mocking the mannerisms associated with arthrogryposis, the visible disability of Pulitzer prize-winning journalist Serge F. Kovalevski. I call him that, not because I particularly value awards or titles (I didn’t even watch the Golden Globes when it originally aired, and I’m an actor), but because Kovalevski doesn’t appear to name himself a member of any disability rights movement, nor focus his journalism on disability topics. Thus a description of him as a “Pulitzer prize-winning journalist” seems to contain far more relevant information than “disabled reporter” does.

As I and many others pointed out over a year ago, referring to the mocking of a disabled person as some unspeakable evil, or as “the final straw” to sever support of Trump’s campaign, is actually ableist. Mocking a disabled person qualifies as evil, certainly, but it is not more evil than creating a mandatory Muslim registry like the Nazis did with Jews. It is not more evil than grabbing women by the pussy without their consent. And it is clearly less evil than repealing the Affordable Care Act, effectively killing millions of mostly disabled people, not just making fun of us. Why weren’t any of those things the final straw? Why is mocking disability met with greater outrage than actions that are objectively, measurably more harmful, to other minorities and specifically to disabled people? The answer to that question lies in the subtext, something all actors love, within Meryl Streep’s rhetoric:

“It sank its hooks in my heart… It was that moment when the person asking to sit in the most respected seat in our country imitated a disabled reporter. Someone he outranked in privilege, power and the capacity to fight back. It kind of broke my heart when I saw it.”

The underlying tone, neatly bookended here, is pity. Just as disabled people merely living our lives is inspiring and heartwarming, on the flip-side directly interacting with a disabled person in a mean way is a low blow, kicking someone while they’re down. Of course in reality, being disabled doesn’t mean we’re “low” or “down” in the first place (unless you’re literally talking about wheelchairs or dwarfism, neither of which describe Pulitzer prize-winning journalist Serge F. Kovalevski).

Making fun of disabled people is the unforgivable sin of the 21st century, not because ableism is bad – the speech didn’t even contain the words ableism, discrimination, or bigotry – but because disabled people are already so tragic and vulnerable. Hiring people who aren’t disabled to play us in movies is fine. Taking away our civil rights, that’s fine. Literally murdering us, no problem. Just don’t point and laugh. Meryl Streep says we lack “the capacity to fight back.” While it’s true that the president of the United States generally has more power than a given New York Times editor, first of all, Donald Trump hadn’t yet been elected to any public office at the time, and second, Pulitzer prize-winning journalist Serge F. Kovalevski can and has responded to Trump in the way that he himself saw fit. There is no abled savior needed to defend him.

Potentially the most troublesome word choice in the speech is when Streep said that Trump “imitated a disabled reporter.” Not mocked, imitated. What happened to the old adage “imitation is the sincerest form of flattery”? I seriously doubt that Pulitzer prize-winning journalist Serge F. Kovalevski felt flattered by Trump’s childish antics. Meryl Streep, did you mean to imply that acting in the manner of a disabled person is what damned this action, not the fact that it was done for the sake of mockery? When an abled actor plays a disabled character, what’s shameful isn’t the stolen opportunity, but that a disabled character is portrayed at all? Maybe that’s why you didn’t even mention Kovalevski by name. He’s just “a disabled reporter” to you, stripped of his personhood and of all his accomplishments. You also managed to mention the recently passed, openly bipolar Carrie Fisher, but as “Princess Leia” – neither disabled nor a person! You disrespected them just as much as you deservedly disrespected Trump. As you said in the very same speech, disrespect invites disrespect, so maybe I should call you “shit head” or something instead of Meryl Streep.

As I often say in presentations about autism, two people who are both ableist are always on the same page, even if they say and genuinely believe they’re not. If you’re a parent using Floortime to manipulate your child into acting neurotypical, you’re not some radical revolutionary. You’re not special for disagreeing with those in the ABA industry, ’cause actually, you agree with them. You agree that disabled people should not be allowed to be visibly disabled in our mannerisms, and your actions reflect that. If you’re a doctor who says that vaccines don’t cause autism, but if they did, you’d have to be “monstrous” to still administer them, then you don’t disagree with anti-vaxxers. Not when they say being Autistic is worse than having polio. Hey Shit Head, do you think being disabled is inherently shameful? That being visible to the world, with uniquely disabled mannerisms, is shameful? If so, you and a guy who’s basically famous for being an asshole are in total agreement.

Image description: Side-by-side photos of Donald Trump (left) and Meryl Streep (right). In comic book speech bubbles, Trump says “I hate disabled people!” and Streep replies “Me too!”

It may seem like I’m over-analyzing a single 1-minute paragraph within a 6-minute speech. That’s because that 1-minute paragraph is all Meryl Streep said about disability. The rest of the speech, well, it was a calculated action from beginning to end: After bullying, she segued into asking her audience to support the Committee To Protect Journalists, and indeed there was a reported spike in donations right after the Golden Globes. That’s great for journalists and probably needed, but was the fact that Kovalevski is a journalist really the centerpiece to this story? Where is the spike in donations to ADAPT, or Not Dead Yet, or the National Council on Independent Living? With regard to disability, all this Golden Globes speech managed to inspire in its viewers was warm fuzzy feelings. It glossed over everything notable that disabled people did in the last year, and instead used one person as a nameless prop to add egos to the list of things being stroked in a rich abled white people’s circle-jerk.

What about the parts of the speech before Kovalevski and Trump?

Before reading any other perspectives, I watched Meryl Streep on YouTube so I could start with my own opinions. She began with what sounded like a speech about diversity. I may not be a comedian, but that should inspire laughter: An abled white woman, delivering a speech, to an audience that is 94% white and 0% visibly disabled, praising that audience for being so diverse. She gave shout-outs to specific actors, and to her credit named their countries of origin including Israel, Kenya, and Ethiopia. But that’s only a third of the names she chose. I’m sorry, but four (4) U.S. states, Italy, and Canada does not qualify as “diversity”. That’s just six (6) white people. To imply that it does reflects denial and rationalization.

Streep made no mention of disability when applauding the diversity of Hollywood. It was as though she did not see the connection within her own speech. No Affordable Care Act. No underemployment of disabled actors. No disability rights advocacy groups. No criticism of ableist movies like Split, The Accountant, and Me Before You, which undermine the work of disability rights groups and fail to employ disabled actors, many of whom are alive thanks to the Affordable Care Act.  If there were any invisibly disabled actors in the audience, I don’t think they were very impressed with the bravery of Meryl Streep to utterly fail at addressing any of the real issues. I, a disabled actor, am not impressed. I, a disabled actor of color, am not impressed.

On Vaccines, Autism and Systemic Bigotry

Compiled by Emma Rosenthal, Dis-ability rights activist, educator, mother, daughter of immunologist, actually.

How do Vaccines Cause Autism: http://howdovaccinescauseautism.com/

“Even if I humor anti-vaccine activists and for a second believe that vaccines cause autism in 0.01% of children they’re administered to (spoiler alert: vaccines don’t cause autism), I am still deeply disturbed that these people are more afraid of people with disabilities than they are fatal, painful and endemic diseases. If cognitive disabilities are more threatening to you than children never getting to grow up because polio makes a comeback, you have priorities to reevaluate my friend. Shame on you for brainwashing mothers and fathers into believing that autism is the absolute worst thing that can happen to a person.” http://millennialjournal.com/2015/03/24/vaccines-the-fear-of-autism-and-the-globalization-of-indifference/

Image of a tweet. Text:  Zach Weinersmith‏Verified account  @ZachWeiner   Follow  More Wait. If autism-spectrum people are over-represented in the sciences... wouldn't that imply that... autism causes vaccines?! RETWEETS 2,017 LIKES 2,547 Mahima RanaJenny ParhamA Staccato SemibreveAidan MouseAndrewmyaccountgothackedJasmine VanceHNCANAN 10:14 AM - 22 Feb 2016

Description: Screen shot of a tweet. Text: From Zach Weinersmith (@ZachWeiner) on Twitter: “Wait. If autism-spectrum people are over-represented in the sciences… wouldn’t that imply that… autism causes vaccines?!” https://twitter.com/ZachWeiner/status/701832529309872129

mage of a cartoon by Zach Weiner. Two people talking. One says

Cartoon by Zach Weiner

This list is a work in progress with newer articles posted at the top of the page, with the date they were posted:

This list is also maintained on the Facebook Page: Radical DISability: https://www.facebook.com/notes/radical-disability/on-vaccines-autism-and-systemic-bigotry/1728498904054211

  • PETA Embraces Autism Pseudoscience http://sciencebasedmedicine.org/peta-embraces-autism-pseudoscience/

  • Autism Occurrence by MMR Vaccine Status Among US Children With Older Siblings With and Without Autism http://jamanetwork.com/journals/jama/fullarticle/2275444
    Breaking new study from JAMA on the lack of any link of vaccines with autism. “In this large sample of privately insured children with older siblings, receipt of the MMR vaccine was not associated with increased risk of ASD, regardless of whether older siblings had ASD. These findings indicate no harmful association between MMR vaccine receipt and ASD even among children already at higher risk for ASD.”
  • “In light of the role of the immune system in these central nervous system (CNS) conditions, the impact of vaccines on childhood-onset neuropsychiatric diseases had been considered and was mainly addressed with regards to the administration of the measles, mumps, and rubella (MMR) vaccine (and its various components) and the subsequent development of autism spectrum disorder (ASD). Although the controversy over MMR vaccination and ASD still exists for some members of the public, this association has been convincingly disproven (9, 10).”
    Temporal Association of Certain Neuropsychiatric Disorders Following Vaccination of Children and Adolescents: A Pilot Case–Control Study http://journal.frontiersin.org/article/10.3389/fpsyt.2017.00003/full

  • “Measles is one of the most contagious and most lethal of all human diseases. A single person infected with the virus can infect more than a dozen unvaccinated people, typically infants too young to have received their first measles shot. Such high levels of transmissibility mean that when the percentage of children in a community who have received the measles vaccine falls below 90 percent to 95 percent, we can start to see major outbreaks, as in the 1950s when four million Americans a year were infected and 450 died. Worldwide, measles still kills around 100,000 children each year.”
    How the Anti-Vaxxers Are Winning https://www.nytimes.com/2017/02/08/opinion/how-the-anti-vaxxers-are-winning.html?_r=0
  • American Academy of Pediatrics Vaccine Safety: Examine the Evidence https://www.aap.org/en-us/Documents/immunization_vaccine_studies.pdf

Cartoon image with six boxes of dialogue, in three pairs. In the first pair of boxes one parent says

Howbabycomics.com

Reiki for a Cause

Fundraiser for
The WE Empowerment Center

Reiki text in JapaneseFor a donation of $30 or more you can have a one hour reiki session with Emma Rosenthal

All donations over $30 are tax deductible.

Make your appointment today!

https://reikiwithemma.wordpress.com/

Reiki with Emma specializes in

  • FibromyalgiaDisability symbol for wheelchair access, cognitive emotional DISabilities, sign language and blindness
  • pain management
  • meditation
  • Focusing and ADHD
  • PTSD and ongoing traumaReiki sessions to be held at DragonflyHIll Urban Farm.
      DragonflyHill Urban Farm is a wheelchair accessible, DISability and LGBTQIAA affirmative, anti-racist, anti-sexist, decolonialist, social justice safe and sober space.

    Please let us know in advance of any specific DISability access requirements.

Word Matters/Words Matter:

On ableist language, the words we
use and alternative discourse

Also posted on the Facebook page of Radical DISability
https://www.facebook.com/notes/radical-disability/word-matterswords-matter-on-ableist-language-the-words-we-use-and-alternative-di/1746544745582960

This is a work in progress of a collection of links on ableist language, with the most recent additions on the top of the page.

 Links

Alternative Discourse

When we give up ableist language we leave room for actual analysis and discourse. Ableist language is essentially supremacist, so if we’re really fighting for social justice, stigmatizing people with cognitive, physical or emotional DISabilities not only perpetuates the marginalization of DISfolx, but also obscures the real problem with what every behavior or ideology we’re calling out. For example, when we say “Stupid White Men”, we not only disparage people with cognitive DISabilities, we also give capitalism, imperialism and institutional racism and sexism, a pass. We fail to provide real analysis, and instead resort to lazy name calling. When we CALL IT WHAT IT IS, instead of using ableist slurs, we actually provide the possibility for deconstructing systems of oppression instead of simply rebranding bigotry to fit one’s own entitled supremacy based on superior intellect or ability.

Stay tuned. More to be added in the future!

Cross Generational Trauma: a resource of links

Cross Generational Trauma: a resource of links

(Work in progress. I especially need links regarding restorative justice. Also, please post your favorite links on this issue.)
Links on the ongoing exploration of cross generational trauma, something that has impacted my lineage and my life tremendously and must inform our activism and policy as we try to create systems of support and determine reparations. Some links posted for future reference. Please feel free to comment on the links and critique their premises. Some basic concepts to consider as we recognize and explore recent evidence that it’s not just socialization and psychological behavior that explains the cross generational transfer, but that the trauma actually is in our DNA.
  1. The wisdom of our ancestors– what has been lost, stolen, forgotten and abandoned– language, customs, wisdom, healing, is also in our DNA. We embody in our cellular memory all the hurt, but also all the love and knowledge of our ancestors.
  2. It stands to reason that it is not just victims who carry the DNA memory, but also the perpetrators. They two carry with them– entitlement, power, abusiveness, violence, guilt. Their inheritance isn’t just the monetary inheritance of centuries of theft and enslavement and exploitation, but the entitlement of and power gained from the abuses inflicted on our ancestors.
  3. That is, power and powerless carry with us, into each subsequent generation this relationship of owner and slave, colonizer and colonized, Abuser and abused, Victimizer and Victim.
  4. I reject the rejection of the term victim. The assertion by many that we choose to be victims, we perpetuate the systemic and cultural tendency to blame the victim, either for their victimization in the first place or in their healing and response afterward. By thinking we, individually can step outside of this history without collective work and collective healing and accountability is to side with oppression and perpetuate abuse. Blaming the victim is the religion of systemic and cross generational trauma. Another term for victim that can be used, is “target” and the term “survivor” is also acceptable, but with the understanding that there is nothing more moral about being a survivor than having not survived. It is NOT a choice. To privilege survivors over those who were massacred is to embrace essential white supremacist ideologies of fitness and worthiness.
  5. I reject the idea that soldiers are victims. Soldiers are perpetrators. If perpetrating violence is traumatic, then that’s easy– stop perpetrating violence.
  6. Trauma is insidious– it can make us lash out at the what triggers us, which may NOT be what caused the trauma or the flashback at all. Like the child who dives under their chair when a plane passes over head, miles from the location of the trauma of war, where passing overhead planes meant the dropping of bombs, those of us in communion, where spaces are actually safe, are not the source of the trauma, just because we are the location of the trigger. It is the work of our PTSD healing to learn to recognize the difference between danger, and the flashbacks that come up when we are safe.
  7. I also want to point out that POST Traumatic Stress Disorder, may not be accurate. Much trauma is not only in the past, the distance past and our DNA, but is ongoing. It is exceedingly difficult to recuperate from ongoing trauma because the wounds are not only fresh, but are constantly being reopened.
  8. Terms like “Children of the Holocaust” and “Post Traumatic Slave Disorder” are headlines here, for the much larger body of work on trauma among Jews and African Americans, respectfully. I use those terms because they also reflect the narrative within those communities, even where the issue of cross generational trauma may be greater than the scope that term may imply.
  9. too often because of its scope and intensity, 6000 years of who Jews are and what we’ve done and what’s been done to us gets encapsulated in the 6 years of the Shoah, and now it Israel. As if aside from 6 years of being the victims of genocide and 60some years of being the perpetrators, is the sum of all we are. (That’s not the narrative, the narrative is that there is some redemption and deliverance for the years of suffering, via Zionism).
  10. The Shoah (Holocaust) came out of years of abuse and genocide– expulsions, crusades (where many Ashkenazi Jewish towns were massacred by the invading armies on their was to the Holy Land), pogroms, pogroms, pogroms, ghettoization, more expulsions, humiliations, incarcerations, segregation, discrimination, etc. Jewish trauma, specifically in Europe, reaches back hundreds of years. For Jews who were not in Europe, the Shoah impacted them in Northern Africa, and the trauma for non-European Jews was most experienced as colonization in the particular geographies of location. The Holocaust studies on cross generational trauma can inform the larger discussion on cross generational trauma, but it is not an isolated event. That degree of racism doesn’t just pop up like a camping tent and disappear just as quickly. The study of Holocaust survivors and their children is very important to this discussion on cross generational trauma, and it provides a very clear and distinct set of data, but there may also have been a predisposition to those genetic changes and the other changes that were passed on to children, due to the centuries of abuse and a much slower genocide, particularly for European Jews. (And by European Jews I am referring to Jews who were geographically in Europe, which would predominantly be Ashkenazi and Sephardic Jews, but would also include many North African Jews and Middle Eastern Jews, in Europe.)

Topics:

Children of the Holocaust

(And other Jewish traumas, but this was the title of the book that started the current discussion on cross-generational trauma)

Post Traumatic Slave Disorder and Cross Generational Trauma in African Americans

“The Truth is that disability has been with us, in us since the beginning of time. Disability has held and kept us. It is in our marrow, in our blood, our sweat and tears. Disability does not make us less than, it makes us who we are. Ableism and anti-Blackness are the enemy. Disability is our kin. While the world has convinced itself and the Black community that disability is a bad word and a bad circumstance. It is neither. Disability and Blackness is pride. Disability and Blackness is innovation. Disability and Blackness is brilliance.

Native Americans and DNA evidence

Childhood Trauma, particularly ongoing trauma and violence

General Research and Cross Cultural Considerations

Responses and Resources for healing:

Restorative Justice

(What it is and what it isn’t)

Meditation and Healing

Bearing Witness

Plus Sized Women of a Certain Age

Or: Who Brought Girdles Back?

All the plus models are young, all the older models are thin and some of us wear flats! So what’s up with the heels and the spanx? Our grandmothers wore girdles. We gave up that shit in the 60s and now the fashion industry is convincing an entire generation of young women to bring them back.#spanxaregirdles #nospanxnothanx #heelsdontdefinebeauty#wecantalllooklikejanefondalillytomlindianekeatonandkateysegal #pantsuitsareugly  What do women of a certain age wear? Plus Model Magazine????

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Facebook screenshot of the fb post from my page, with the text of this blog post